Available Datasets

Dataset
Ambulatory Care Health Information Lab Request data
Annual Hospital Statistics Request data
Anonymous Day Hospitalization Request data
Anonymous Hospital Stay - Anonieme Ziekenhuisverblijven (AZV) - Sejours Hospitaliers Anonymes (SHA) Request data
Begeleiding in Cijfers Request data
Belgian Abortion Register Request data
Belgian alpha-1 antitrypsin deficiency registry (Alpha One International Registry) Request data
Belgian BLINCYTO study Request data
Belgian Cancer Register: Standard version Request data
Belgian Cancer Registry: Anatomical Pathologists Request data
Belgian Cancer Registry: Effectiveness of Endometrial Cancer Treatment Request data
Belgian Cancer Registry: Head and Neck: orofarynxcarcinomen Project Request data
Belgian Cancer Registry: Robot Assisted Laparoscopic Prostatectomie Request data
Belgian Cohort Study Entresto Request data
Belgian Cohort Study Kalydeco Request data
Belgian Cystic Fibrosis registry Request data
Belgian Diabetes Registry Request data
Belgian Early Warning System for Drugs Request data
Belgian familial adenomatous polyposis registry Request data
Belgian Haemophilia Registry Request data
Belgian Hepatitis C Registry Request data
Belgian Hernia Database Request data
Belgian HIV-AIDS Cohort Study Request data
Belgian HIV-AIDS Post-Exposure Prophylaxis database Request data
Belgian HIV-AIDS Viral Loads Request data
Belgian HIV-AIDS: Incidence Request data
Belgian Langerhans cell histiocytosis registry Request data
Belgian Lung and Tuberculosis Association: Directly Observed Treatment Request data
Belgian Molecular Profiling program of metastatic cancer for clinical decision and treatment assignment Request data
Belgian Neuromuscular Diseases Registry (BNMDR) Request data
Belgian Obstetric Surveillance System Request data
Belgian Pain Registry Request data
Belgian patient database for Wilson disease Request data
Belgian Patient registry for rare bleeding disorders Request data
Belgian Pediatricians Nephrology Registry Request data
Belgian Registration of acetabular and pelvic fractures Request data
Belgian Registry for Assisted Procreation Request data
Belgian registry of primary immunodeficiencies Request data
Belgian registry on acromegaly, epidemiology and quality of care Request data
Belgian Registry Oncofreezing Request data
Belgian Registry Vaginal Mesh Request data
Belgian rituximab therapy registry for immune anemia and thrombocytopenia Request data
Belgian severe chronic neutropenia patient registry Request data
Belgian sickle cell anemia registry Request data
Belgian Substitution Treatment Registry Request data
Belgian systemic sclerosis cohort Request data
Belgian Treatment Demand Indicator Registry Request data
Belgian virtual tumourbank Request data
BelRAI palliative screener Request data
BelRAI Screener Request data
Biobank of the pediatric granulomatous arthritis international registry Request data
Birth Register Request data
Birth Register Request data
Burns Registry Request data
Care Trajectory Chronic Kidney Disease Request data
Care Trajectory Diabetes Mellitus Type 2 Request data
Central Registry Rare Diseases Request data
Central Traceability Registry Inplants Request data
Cerebral Palsy Registry Request data
CIC project - Projet CIC Request data
Commented Medicines Repertory for the Electronic Medical Record Request data
Congenital Infections Registry Request data
Databank Studiecentrum voor Perinatale Epidemiologie (Flanders) Request data
Database Birth Register Request data
Database Centers Mental Health Care Flanders Request data
Database Centre d'Epidémiologie Périnatale (BXl Wallon) Request data
Database Elderly care Request data
Database Farmanet Request data
Database Haemoglobinopathies Request data
Database Health Care Request data
Database Mortality Register (Flanders) Request data
Database Palliative care (Flanders) Request data
Database Population Request data
Database Pupil Guidance Centres - Leerlingen Activiteiten en RegistratieSysteem Request data
Database Rest/care homes Request data
Database Vesta / Family care Request data
Databases of authorised medicines for use by humans Request data
Declaration Infection Diseases Brussels-Capital region Request data
Declaration Infection Diseases Walloon Region Request data
Delta Request data
Development of dashboard for bloodconsumption in hospitals Request data
Documents FH Request data
Documents H Request data
Documents N Request data
Documents P Request data
Documents Pat Request data
Documents PH Request data
Données signalétiques des dispensateurs et établissements de soins Request data
Eudravigilance Request data
European alternating hemiplegia and rare epilepsies registry in childhood Request data
European Antimicrobial Resistance Surveillance Network Request data
European network for the study of orphan nephropathies registry Request data
European Point Prevalence Surveillance Request data
European registry of human alveolar echinococcosis: Belgium Request data
European Surveillance Antimicrobial Consumption (ESAC-Net) Request data
European Surveillance of Congenital Anomalies - Antwerp Request data
Financial feedback by pathology - MKG Request data
Finhosta Request data
Flemish population survey on breast cancer Request data
Flemish population survey on cervical cancer Request data
Flemish population survey on colon cancer Request data
Flemish population survey on congenital metabolic disorders Request data
Flemish Registration of acute coronary events Request data
Flemish Renal Registry Request data
French Community Renal Registry Request data
Hainault and Namur registry of congenital anomalies Request data
Hand Hygiene Request data
Healthcare Associated Infections & Antimicrobial Use in European Long Term Care Facilities Request data
Hospital pharmaceuticals Request data
iCAREdata Request data
Initiative for Quality promotion and Epidemiology in Diabetes care Request data
Innovative Radiation therapy Request data
Intego Request data
Intego II: Surveillance van milieu-gerelateerde morbiditeit Request data
Integreo: BOOST – Better Offer and Organization thanks to the Support of a Tripod Model Request data
Integreo: Chronic Care and Cure for Health Request data
Integreo: CHRONILUX Prise en charge globale des personnes présentant un syndrome métabolique et ses conséquences Request data
Integreo: De Koepel - Geïntegreerde zorg voor de chronische cliënt en omgeving met polyfarmacie, meervoudige ziekenhuisopnames of kansarmoede Request data
Integreo: Empact! Request data
Integreo: Federated consortium for Appraisal of Integrated care Teams in Health in Belgium (FAITH) Request data
Integreo: Kansarmoede en Chronische Ziekte, een samenspel? Request data
Integreo: PACT- Plan d’Accompagnement Concerté Transversal: Dispositif interdisciplinaire de prise en charge des patients souffrant d’une maladie chronique dans la région du Centre Request data
Integreo: RéLIAN : Réseau Liégeois Intégré pour une Autonomie Nouvelle Request data
Integreo: RésiNamur : Projet Soins Intégrés Malades Chroniques du Grand Namur sur le Cumul des Fragilités Request data
Integreo: Zorgintegratie De Brug, de weg naar mijn eigen (pro) actief gezondheids- en welzijnsplan Request data
Integreo: Zorgregio Waasland: Zorgcontinuïteit en empowerment chronisch zieken Request data
Integreo: ZorgZaam Leuven Request data
International patient registry and cohort for congenital disorders of glycosylation Request data
InterRAI Acute Care Belgium Request data
InterRAI Community Mental Health Belgium Request data
InterRAI Home Care Belgium Request data
InterRAI Long Term Care Facility Belgium Request data
InterRAI Mental Health Belgium Request data
InterRAI Palliative Care Belgium Request data
IQED children and adolescents Request data
IQED Foot clinics Request data
KCE Trial - Order sets for lab tests Request data
Linked data by the Technical Cell Request data
Memberships of the insurance organisations Request data
Minimale Psychiatrische Gegevens - Résumé Psychiatrique Minimum Request data
Minimale Ziekenhuis Gegevens - Resumé Hospitalier Minimum Request data
Mirage Request data
Mortality Register Request data
Mortality register (Belgium) Request data
Multidisciplinary Oncological Consultation Request data
Multiple Sclerosis Registry Request data
Nationaal kadaster van genetische tests Request data
Nationaal kadaster van medische hulpmiddelen Request data
National Register Request data
National Surveillance Antimicrobial Consumption in Belgian Hospitals (BeH-SAC) Request data
National Surveillance Healthcare Associated Infection in Intensive Care Units Request data
National Surveillance Influenza Request data
National Surveillance Meticillin resistant Staphylococcus aureus in Belgian Hospitals Request data
National Surveillance multi-resistant micro-organisms in Belgian Hospitals Request data
National Surveillance Septicemia in Hospitals Request data
National Surveillance Surgical Site Infections Request data
Navigator Request data
Newborn college Register Request data
Notifiable Infectious diseases register: Flanders Request data
Notification of adverse reactions after taking a medicine for human use Request data
Notification of adverse reactions following the administration of blood or a blood derivative Request data
Notification of adverse reactions following the use of a human body material Request data
Notification of adverse reactions following the use of a medical device and / or accessory Request data
Occupational health data MISI Request data
Osseointegrated Amputation Prosthesis for Patients Request data
Pediatric granulomatous arthritis international registry Request data
Pedisurv: Surveillance Infection Diseases in Children Request data
Permanent Sample Request data
Pharmanet Request data
POMALYST Registry Request data
Pre Care Trajectory Diabetes Mellitus Type 2 Request data
Prematurity Cohort Registry Request data
Project Negatieve druktherapie Request data
Project on aggregation of adverse events Request data
Project on Cancer of the Rectum Request data
Project Traceability and monitoring of unlicensed medicines for advanced therapy Request data
Prospective collection of tissue, ascites and plasma samples from patients with ovarian cancer Request data
Prostate & Brachytherapy Registration Request data
Qermid© Orthopedic Prosthesis Identification Data: Orthopride Request data
Qermid©Orthopride "Plus" Request data
QML Proficiency test for laboratories - Alcohol in blood Request data
QML Proficiency test for laboratories - Allergy Request data
QML Proficiency test for laboratories - Andrology Request data
QML Proficiency test for laboratories - Bone Marrow analysis Request data
QML Proficiency test for laboratories - Cardiac markers Request data
QML Proficiency test for laboratories - CD34 Request data
QML Proficiency test for laboratories - Chemistry Request data
QML Proficiency test for laboratories - Coagulation Request data
QML Proficiency test for laboratories - Down Syndrome Request data
QML Proficiency test for laboratories - Drugs in urine Request data
QML Proficiency test for laboratories - Flow cytometry Request data
QML Proficiency test for laboratories - HbA1c Request data
QML Proficiency test for laboratories - Heavy metals Request data
QML Proficiency test for laboratories - Hematology Request data
QML Proficiency test for laboratories - Immunoassays Request data
QML Proficiency test for laboratories - Immunohaematology Request data
QML Proficiency test for laboratories - Infectious serology Request data
QML Proficiency test for laboratories - Microbiology Request data
QML Proficiency test for laboratories - Molecular biology: hemato-oncology Request data
QML Proficiency test for laboratories - Molecular Biology: Microbiology Request data
QML Proficiency test for laboratories - Non-infectious serology Request data
QML Proficiency test for laboratories - Parasitology Request data
QML Proficiency test for laboratories - POCT Glucose Request data
QML Proficiency test for laboratories - Therapeutic monitoring Request data
Quality Electronic Registration of Medical acts, Implants and Devices© Endoprothèses Request data
Quality Electronic Registration of Medical Implant Devices© Coronaire stents Request data
Quality Electronic Registration of Medical Implant Devices© Hartdefibrillatoren Request data
Quality Electronic Registration of Medical Implant Devices© Pacemakers Request data
Quality Indicators Healthcare Associated Infections Request data
Registratie van Belgische pediatrische palliatieve zorgactiviteiten Request data
Registration Intensive Care Request data
Registry Bariatric Surgery Request data
Registry Belgian Association for Cardio-Thoracic Surgery + Transcatheter Aortic Valve Implantation Request data
Registry Colonoscopy Request data
Registry Foetal Chromosomal Abnormalities Request data
Registry for Pediatric Endocrinology and Diabetology Request data
Registry Genetic Test Results Request data
Registry Indications Positron Emission Tomography Request data
Registry Metabolic Diseases Request data
Registry Neuromodulation Request data
Registry Next-Generation-Sequencing (NGS) tests for oncology Request data
Registry of Cardiac Incidents Request data
Registry Orphan medicinal products Request data
Registry Radiotherapy-Oncology Request data
Registry Rare Neonatal Surgical Conditions Request data
Registry “Predictive tests for a therapeutic response” Request data
Reimbursed Pharmaceuticals Request data
REVLIMID Registry Request data
RIZIV Nomenclature & pseudocodes Request data
SAM Chapter IV Information Communication System Request data
Sentinel General Practitioners Request data
Sentinel Hospitals for Severe Acute Respiratory Illness Request data
Service Mobile d'urgence - Mobiele Urgentie Groep Request data
Severe Astma Register Request data
Shared Arthritis File for Electronic use: SAFE/TARDIS 1.0 Request data
Socioeconomic Status and Cystic Fibrosis Clinical Outcomes study Request data
Spine Tango Registry Request data
Statistics on Income and Living Conditions Request data
Statistieken ROB-RVT-CSJ Request data
Study "Belgische werknemers getroffen door kanker" Request data
Surveillance of Clostridium difficile Infections Request data
Surveillance of Creutzfeldt-Jakob disease by Belgian Neurologists Request data
Surveillance of infectious diseases by National reference centres for humane microbiology Request data
Surveillance of Infectious diseases by sentinel laboratories (EPILABO) Request data
Surveillance of Infectious diseases in Children by paediatricians and GP Request data
Surveillance of sexually transmitted infections by a sentinel network of clinicians Request data
Tellus Request data
THALOMID Registry Request data
Tissue samples of patients with primary immune deficiencies Request data
Trauma Registry Request data
Tuberculosis Registry by Fonds des Affections Respiratoires Request data
Tuberculosis Registry by Vlaamse vereniging voor Respiratoire Gezondheidszorg en Tuberculosebestrijding Request data
UREG: Urgency Registration - Enregistrement des urgences - Spoedgevallenregistratie Request data
Vaccinnet Request data

This request portal  is part of the #dataforbetterhealth initiative. The initiative “#dataforbetterhealth” aims to identify the existing impediments for a FAIR data policy in public health and to formulate, test and implement solutions for these impediments  in order to achieve an integrated data access policy. These solutions must be technically, semantically, economically and legally sustainable. In addition, a widely supported governance model needs to be elaborated.

It can be expected that an integrated data access policy will lead to better support for scientific research, a more effective development of medicines and medical devices, improved of patient care, improved and support for clinical trials, support for personalized care, support for prevention, patient centered care, and lower medical expenses…

In the first stage of the initiative, the request portal will identify and quantify the need for and use cases with the data sets created with governmental support. This will help to set priorities in making available open and FAIR data sets. The requests are immediately forwarded to the owners and hosts of the requested data set.  They will treat your request with care. In a later stage, a workshop "meet the data manager" will be organized . Applicants will have the opportunity to meet the data manager of the requested data set and will receive feedback on the request. 

The request portal is not only for researchers. In fact, the “#dataforbetterhealth” initiative wishes to encourage and engage all service providers and knowledge institutes active in the field of healthcare (including drug development, medical device development, …), health economy, information management, privacy and security, legislation (universities of applied sciences, …). …, both public and private organizations, profit as well as non-profit (data science communities, open data communities, open Knowledge communities, …) organizations.

#dataforbetterhealth is an INITIATIVE of the federal minister of Public health, the federal minister of Digital Agenda, the federal Secretary of state Privacy, SUPPORTED by Sciensano, NIDO – the innovation lab of the federal government and DigitYzer, and INSPIRED by RIZIV-INAMI, FOD-SPF Public Health, FAGG-AFMPS, IMA-AIM, IMEC, AGORIA, PHARMA.BE, VPP, LUSS, HOSPITALS.be, KCE, BOSA, …

More information about the  “#dataforbetterhealth” initiative  is available at www.dataforbetterhealth.be